Archive for January, 2008|Monthly archive page

Cancer today, cancer tomorrow

Well, guess my wishful thinking didn’t come through this time as I just got a talk-through of the result of my PetScan.  My cancer has spread, this time definately to the lungs with three extra nodules (tumors), evidence of progressive metastatic disease in peritenell (sp?) (the pelvic area).  However, my liver is stable which I think is good. 

Of course I cried at first and I really am surprized because I feel so well.   But thats the way it goes I guess, lifes a bitch sometimes.

Life goes on

Don’t know what else to say about the diagnosis so I will let it sit for a while.  However I have been talking with Phil of KOWS a low power radio station in Occidental which is about 30 minutes drive away from Guerneville.  I already do three Morning Shows at KGGV LP in Guerneville where I read the paper and play big band style jazz, but recently I’ve wanted to do a music show and I like the idea of doing it on a brand new station, I think their listenership would be even less than KGGVs but I like the intimacy.  They allow dogs in the studio at KOWS so it will be fun to bring Simon along for companionship.

Still Not Gone

Awaiting my next PetScan, set for the 24th.  I occasionally still have a bloated stomach, on Friday I went to see my GP doctor about my personal problems and she suggested maybe cystitus, which made sense, and she prescribed me antibiotics.  I think I may have mixed my supplements and antibiotics because on Saturday night I was throwing up six times between 5 p.m. and 11 p.m.  I’m hoping its because of the antibiotics anyway. 

Still No Word From Dr. Slavin

But that might be because I mentioned I was going to get a PetScan soon and would send it to him when I had it done.  He probably is waiting to do that, plus dealing with building his own hospital, guess that would make anyone busy.

Off to See Some Art

Went off to the local theatre yesterday, its all volunteer, and had a great time.  There were eight plays and all of them were humerous, succesfully so in most cases.  I laughed a lot and after the shows there was a reception for the playwrights so I got to eat a lot of good food and share some great company, you can’t beat that.  Robert from the radio station went with me and we might  go to the John Mayall show on the 24th in Santa Rosa, if we can get on the guest list, it shouldn’t be too difficult for Robert as he wrote a review of Mayall that helped promote the show, but I am holding my breath as to whether I can get in as his plus one.  Lets see how my karma works out.

More Radio

Got a call from Phil of KOWS, another local volunteer radio station around here, I had expressed interest in a show and he called me up.  We decided on Tuesday from 1-3 as my show time, so there we are . . . the 22nd, tomorrow, will be my first show and I’m looking forward to it!

One Step Further On

Well, didn’t plan on not writing for a few days but it happened nonetheless, so I have some catching up to do.  I guess the main reason I didn’t write is my fear, I have been loosing blood, probably though my rectum, for about four days along with incredible bloating and pain around the abdomen and stomach.  I called up both of my doctors and went to see them.

I saw Daniel Dunphy first, got some more supplements and updated him to my position with Dr. Slavin, Daniel is excited by his procedures and we talked about the incredible difficulties that American doctors have in getting permission to operate facilities like Dr. Slavin’s.  That is so bogus, we can buy alcohol or cigarettes, or even candy bars, but not supplements or alternatives to the ‘doesn’t really work’ world of chemotherapy.

The Symptoms

Were blood in the water when I went to the bathroom, pressure in my abdomen and stomach and pain in those places too.  I had no constipation but it felt like I did (due to the bloating).  I know this isn’t attractive to read but when you get really ill these are the things you have to pay attention to and if we all did this while we were healthy probably a lot of disease would be caught before it is.  Anyway after the first day I called my doctors and today (January 10) I saw the nurse practitioner at my oncologist’s office.  They did a digital exam to see if I had hemmeroids and it seemed I didn’t although I guess my rectum was longer than the nurses’ finger so I possibly could have one.  Seems more likely its cancer of the rectum which had occured to me (or just the return of the cancer, with all the pressure in my abdomen it felt like a blockage had grown inside).  I will be set up for a Pet Scan in a week or so and we will see then what happens.  I did have a blood pull that was ‘good’ though, they thought that maybe I was anemic so I’m not anemic, though I would rather be anemic than have cancer for sure.

 Sent Off My Medical Records

 Well, it took a while but I got both my medical records off and the money wired to Dr. Slavin.  It should arrive in a day or two from today and I am excited about this.  Daniel Dunphy tells me he thinks I am the perfect candidate for this, and so do I, but I worry that if this new problem ends up being cancer that I will be too far gone for doctor Slavin’s treatment.   Anyway, Daniel Dunphy described for me some of the process that Dr. Slavin goes through and it seems like the whole process can be done in a couple of weeks, that the treated lymphs can be returned to my body and (if lucky) will eat up the tumors in a day or two (!) and then I wait for the Dr. to make up a vaccine to take home with me.  Daniel Dunphy was telling me about a patient of his who went to Dr. Slavin, he had been given four months and has been free of cancer now for four years.   This patient is in the process of finding funding for the Doctor and for potential patients.  I have the feeling that this will not be quick enough for me but you never know.

Vitamin D

When I visited Daniel Dunphy he wanted to up my dose of Vitamin D to every day instead of every other day.  He was telling me how many people suffer from a deficiency, I mentioned that seemed strange as we all spend some times outdoors, but Dunphy said that to get a ‘dose’ of Vitamin D you would have to stand outside, naked for twenty minutes with full sun (like in June or July).  So that made it more apparent why people would have such a deficiency, I am aware that the Canadian Cancer Society has put its full force behind Vitamin D and good for them, its cheap and lets hope it works!  I really like the Canadian Cancer Society, when I was trying to find out statistics about how long I might live with my cancer (can’t help being a little morbid at times) I would go to the American Cancer Society and it was like reading my medical records, I could get most of the words, but to get any sense out of it you have to be very versed in medical terminology so their information was useless to me.  Then I tried the Canadian one and lo and behold they seemed to have a website set up for someone who isn’t a medical professional and I found what I needed right away, and it wasn’t difficult to read at all.   What nonsense to keep this information from us, do they think that people who are probably going to die have no right to know how much time they might have left?  (And I’m well aware that that varies per person but its still good to get a ballpark figure.)