Archive for the ‘Dr. Slavin’ Tag

Keeping at it still

Well, it seems like the good times come and the good times go.  Most of the time I stare at the walls and wonder when I’ll have the strength to move around more.   So far Cathey’s hypnosis has worked best of all to stem the pain, although I only use that occasionally.  Cathey only charges $75 a hour for her work which is more than fair.  I’ll add in her website reference next time I get on.  Yeah, I said that last time, but hey I’m pooped 85% of the time.

New Doctor

Well, at last I sign up with Dr. Issah Eziah’s (sp?) office in Sebastapol.  I ask them if they have anything that they might offer me as treatment and they suggested Vitamin C and K infusions.  This is pretty stock treatment and has some good figures behind it, however it costs $250 a treatment and they want me to have two treatments per week, on an ongoing basis too.  No wonder people don’t follow alternative treatments, thats $26,000 a year!  Yikes.

Dr. Slavin

I asked them about Dr. Slavin and whether they had heard of him.  Not only had they heard of him, but were already prepping various of their patients for treatment by the doctor.   All I have to do it to get a current petscan so that he knows my condition (which hopefully is not too bulky for him to work with.)  We will go from there.  I live in hope.

Further On Well, What a Change

So, I didn’t expect it but today finds me on the path to my next chemotherapy. I guess it started on Saturday when I just felt, bad, stale, stayed in bed most of the day. I went out dancing at night, but couldn’t move much, might have been me, might have been the music – most probably me. However Sunday was horrific, I spent the night writhing in pain, I must have taken at least four of my painkillers before giving up. I was throwing up this thick greenish black stuff with coffee grinds in it (well, thats what it looked like and I got several chances to look up close). First thing Monday morning I called up and asked for a doctors appointment, sorry they said “the doctor is busy” you can’t see him until May (!!what!!). So I asked for an appointment with a nurse, who called me back first and actually got me an appointment with the doctor that day (see, its all a con).

Forward Into The Past

So I crawl into the oncologists office. At this point I have taken another couple of painkillers and these kicked in so I’m feeling vaguely human. Still, once in the office I start crying while talking with the doctor. He did explain some things for me. The pain, why it was so incredible – and was this the start of another stage of my cancer? This terrified me more than anything. The doctor told me that it hurt so much as one of the tumors in my liver would occasionally press against a nerve ending in the liver. Made sense to me. I asked the doctor how long he thought I had if I did nothing “months or years” was his rather vague answer, but it made me happy, even if death is in your future its a lot easier to face from a distance. Anyway, the pain had weakened me and when he broached the subject of chemotherapy I went for it. Now I wonder, the scheduler called today to schedule my first infusion which is due to last for four hours. God help me, and I mean that. At the tuition meeting I think I am going to ask the nurse if I can start at a shorter infusion and work my way up, I am definitely paranoid about chemo now. Before I left the doctor prescribed me some morphine for when I have periods like this again, hopefully not for a LONG LONG time.

More Radio More KOWS

So, my favorite therapy is radio, started off with my morning show on KGGV LP, reading stuff from the newspaper and playing big band stuff, nothing to complain about there, I had a bunch of fun. Then comes the afternoon and I am off again to KOWS for my Tuesday music show. The radio station is above a fabulous organic restaurant called Howards so I stopped by before the show and got myself a healthy juice (trying to eat right, all part of the program.)

I am trying to get better each show I do and I think this time I improved on my mic breaks. Kept myself comfortably in the green range and talked quietly. At the last staff meeting (also the first) I met Jeffrey Weissman, who is in a similar health position to myself and is soon to be a DJ on KOWS. Jeffrey is a ‘professional’ entertainer and has his own website, try it: http://www.jeffreyweissman.com should take you there. If it doesn’t let me know. Anyway I met Jeffrey at the meeting and picked his brains for advice about my mic breaks, I could tell that he didn’t really want to go there (I mean you never know how people are going to react to advice even if its solicited) but he suggested I move about less (mic not omnidirectional), don’t be afraid of a little silence, and one other thing that I forget! Anyway the point is I want to learn, I want to get better because I want to get somewhere. Or at least sound good while I’m trying. And Jeffrey, I don’t think I moved about too much while doing my mic breaks, thanks for the advice.

Dr. Slavin Works With Dr. Bozdeck

Or so I hope anyway. My oncologist said he was willing to work with Dr. Slavin, which made me happy and I’m sure Dr. Slavin would rather communicate with another doctor but sheesh this puts the procedure months into the future. Perhaps though that will give me the time I need to up my funds.

Basically All Is OK

OK, I admit it, most of the time I am pretty happy. Even though there are periods of pain for the most part I am a very lucky person, blessed with great acquaintances, friends, fabulous pets and wonderful music. A boyfriend might be nice, but there I go complaining again. Anyway while I am hacking away at this keyboard I might as well put out a request to the universe to supply me with some supportive, loving companionship to help me through these times.

Back to Christine

Well, I feel I am ‘normalizing’ again, less crazy angry Christine and more of the ‘well, thats the way it is Christine’ who is making plans for the future.  I guess that will teach me to google and try to take command of my medical care by reading my medical records, now I know why they put it in such alien language.

Went to Church

That was pretty unusual for me, and a Greek Orthodox church to boot, not usual at all for this lapsed methodist.  The reason was to see a saint, called St. John, who is known for healing miracles.  He is buried at the church and you can just go to the church, put a little donation in the box, then enter into the main part of the church (which is on Geary Blvd.), the church itself looks large from outside but small and almost cozy inside.  The first miracle.  I felt very comfortable inside, stained glass to the right and left, lots of gilting, various podiums with stations on them, and a tower at the top, looking like a separate piece of architecture a high round tower with windows ramdomly attached (it seemed).  St. John was to the right as I entered in his own small shrine.  There were pews at the entrance and I sat in one, looking around trying to figure out what I was supposed to be doing.  I saw a man lighting the candles around the church, another man was spreading incense as he walked around the church and the third was singing meditatively (I’m sure theres a correct word for it but I can’t get it off the top of my head).  It was extremely peaceful, but at that moment I didn’t feel entirely peaceful. 

So I feel comfortable enough now to go to see the saint.  Up I stand and walk over to the side of the room, walk up the little steps to pay my respects.  Some people kiss the floor but that doesn’t seem right for me to do, so I spoke some respectful words to St. John  – asking him if it was ok for me to approach him and ask for help.  It seemed I got the OK so I went closer, seeing the naked hands of the saint, embalmed, dark dark brown hands.  As I started asking for help (which I didn’t do out loud) I started crying – something I don’t do at the drop of a hat especially at my age.  I asked the saint for help and felt some kind of response.  Who would dare share these feelings, am I nuts to think a dead saint could heal me?  Or am I nuts to allow some doubt to enter and maybe spoil the process?  I don’t know, but this stuff all goes through my head, but mostly a feeling of being accepted and cared for went through me.  I stood there for  a few seconds, said “Thank you” to the saint and went back to the pews.

Once back I felt so relaxed and almost like I could testify to a miracle, even if he didn’t cure me he moved me in the style that a wonderful piece of music would ‘move’ me, changing my mood drastically.  I spent more time taking in the church and its cozy beauty, in fact I almost fell asleep (it was about 5 p.m.) sitting up!  Out of calmness, of course – not from boredom or tiredness.  A few minutes later I felt moved to go and see the saint again.   This time a smile glomed itself onto my face and I felt happy, who knows why?  I certainly felt that something happened and hope that the saint has been good to me.

Then to Home

After the second visit I left, talked with my friends brother, who turned me on to the saint after the saint had cured his sciatica.   I recall my aunt who was cured of an ongoing (for over ten years) back problem that the medical authorities had wanted to give her a body brace to help with.   It was a pretty bad back problem.  For a couple of years my aunt had been getting help doing housework and other stuff difficult with a bad back, from her neighbor.  The neighbor suggested one day to my aunt that my aunt visit her church’s faith healer.   My aunt wasn’t (and still isn’t) a woman of orthodox faith and yet two hours after visiting the faith healer, her pain went away – never to return!  And she still doesn’t go to church.  So, I see no problem with adding the saint to my list of possible cures for cancer.

I Got An Email From Dr. Slavin

There is was!!!!!  Gasp I said as I opened my hotmail account (before it started acting up) and there was the email from Dr. Slavin that I had been waiting for for several weeks.   Would he accept me?  I opened the email, to say I was nervous was just not good enough.  So, I open the email and start reading and the first paragraph he mentions that he needs more updated records, only having my PETscan from April of last year.   This pisses me somewhat as I went out of my way to give the people his address, phone number, fax number and email and they said that they would send the info along.  But, they also said they would send a copy to me and they never did.  So, I faxed off a copy of the radiologists report to the Dr. and will have to go by the oncologist’s office to get a copy of the CD that they put my PETScan on.   They did this before when I went to Daniel Dunphy in S.F., they said ‘no problem’ and then didn’t do it.  When they sent me to a physical therapist – they got the records out to them and that was just for my neck – why not send my records to actual doctors.  Nag nag nag, it just seems unjust and just not right and other things with just in.

Still Not Gone

Awaiting my next PetScan, set for the 24th.  I occasionally still have a bloated stomach, on Friday I went to see my GP doctor about my personal problems and she suggested maybe cystitus, which made sense, and she prescribed me antibiotics.  I think I may have mixed my supplements and antibiotics because on Saturday night I was throwing up six times between 5 p.m. and 11 p.m.  I’m hoping its because of the antibiotics anyway. 

Still No Word From Dr. Slavin

But that might be because I mentioned I was going to get a PetScan soon and would send it to him when I had it done.  He probably is waiting to do that, plus dealing with building his own hospital, guess that would make anyone busy.

Off to See Some Art

Went off to the local theatre yesterday, its all volunteer, and had a great time.  There were eight plays and all of them were humerous, succesfully so in most cases.  I laughed a lot and after the shows there was a reception for the playwrights so I got to eat a lot of good food and share some great company, you can’t beat that.  Robert from the radio station went with me and we might  go to the John Mayall show on the 24th in Santa Rosa, if we can get on the guest list, it shouldn’t be too difficult for Robert as he wrote a review of Mayall that helped promote the show, but I am holding my breath as to whether I can get in as his plus one.  Lets see how my karma works out.

More Radio

Got a call from Phil of KOWS, another local volunteer radio station around here, I had expressed interest in a show and he called me up.  We decided on Tuesday from 1-3 as my show time, so there we are . . . the 22nd, tomorrow, will be my first show and I’m looking forward to it!